Kathy Rokita and son Teddy 8 yrs old teach viewers about a neuro-genetic disorder that occurs in one in 15,000 live births.
Angelman Syndrome (AS) is often misdiagnosed as cerebral palsy or autism. Characteristics of the disorder include developmental delay, lack of speech, a happy demeanor, seizures and walking and balance disorders. Individuals with Angelman Syndrome will require life-long care.
The Angelman Syndrome Foundation will host 29 walks in 29 U.S. cities in 2014. For the first time, a walk will be held in the Indianapolis area. After attending the Cincinnati AS walk for a few years, Kathy Rokita agreed to organize the inaugural Indy walk. The new family fun walk will take place on Saturday, May 17, at Carmel’s West Park, 2700 West 116th Street. Onsite registration opens at 8 a.m. The walk begins at 9 a.m. Proceeds of the walk fund education and research into therapies and treatments for AS. To register and/or donate online go to http://secure.angelman.org/index.cfm?fuseaction=donorDrive.event&eventID=618.