FORT WAYNE, Ind. (WANE) — A child with a rare disease that affects about 1 in 70,000 births is getting the trip of a lifetime thanks to the Make-A-Wish Foundation.
With tears in her eyes, mother Lori Schmackers said she was grateful for the trip to Florida her and her family would soon be taking.
“It’s kind of overwhelming, it’s very special,” she said.
Four-year-old Adriane was diagnosed with Mucopolysaccharidoses (MPS). It’s a genetic disease that is caused by the body’s inability to produce specific enzymes. In Adirane’s case, she has lost her ability to hear.
Lori said she lit up when they told her they were going to Florida.
“I gave her the sign for airplane, and she had a big smile on her face and started laughing,” Lori said. “She was pretty excited about that.”
While on their trip, the family plans to go to Disney World, Seaworld and Clearwater Beach. Although the trip allows the family to enjoy some time on vacation, they chose this week because they will get the chance to meet other families dealing with MPS.
“We chose this week to go because the national MPS conference is down there at the same time, we’re hoping we can meet up with some of those families.”
Adriane is looking forward to dressing like a princess while in Disney World, among the many things she can’t wait to do. The family has already scheduled an appointment with the Bibbidi Bobbidi Boutique, which transforms children into princesses.
Adriane’s mother said this is an event [Adriane] will remember the rest of her life.